Sunday, September 26, 2010

September Update!

Here's Tricia with our latest update. -- Troy


We are way overdue on our blog update…Post-surgery restrictions have drastically slowed our daily pace, and yet, somehow, the days seem to pass more quickly than ever! We are so very proud of Madelyn and how she has adapted to all of the changes necessitated by surgery. She is now eating baby food without complaint, although some credit is certainly due to our three secret weapons:

  1. Letting her push the buttons on the blender so that she gets to help prepare her meal
  2. Disney/Pixar movies (helps distract from the constant spoonfuls of liquefied meals)
  3. Half-and-Half (cream makes almost anything taste better!).

Each meal takes almost 30 minutes, and Troy and I are eating our meals separately out of Madelyn’s sight. It just seems mean to eat solid food in front of her!

Much to our chagrin, we have also had to use the movies at bed time to help her relax. No amount of cuddling and rocking seems to help at night when she is wearing the bigger casts, but Pixar’s Monster’s Inc. somehow works magic! Madelyn’s favorite character seems to be Boo (the little girl with pigtails who does have some resemblance to Madelyn). After a week of Monster’s Inc., however, Madelyn started watching the movie rather than going to sleep – she would laugh, twirl, and dance with all the funny parts. So we bought a nature scenery DVD with Mozart music and that seems to be doing the trick now.

We are really looking forward to the day when we can have regular family meals together again (without a cartoon playing in the background), and when Madelyn can comfort herself to sleep again. It won’t be long! We saw the surgeon for a post-op appointment on Monday and she was very pleased with Madelyn’s healing progress. The casts have to stay on for just another three weeks (maybe a little longer for night time only) and, starting next Monday, we can reintroduce soft breads and pastas into her diet. She will be so excited!

At the post-op, we were also encouraged to see that Madelyn’s latest hearing tests are much improved over the initial ones done. The tubes seem to be doing the trick! The speech therapist will also be doing an evaluation, but she will not be meeting with Madelyn until 2-3 months from now.

Madelyn has added a few more animal sounds and movements (i.e. an octopus waggle and a lobster snap) to her repertoire in the last few weeks and she loves to go find stuffed animals that match animals she identifies in books. She is working on “Daddy” as her fourth word (after "Mama," "Hi," and "Yeah"). She can also now point out eyes, ears, nose, mouth, hair, fingers, toes, cheeks, and chin. And she is starting to exhibit a very active imagination with pretend play – she likes to wear her stethoscope and listen to people’s breathing, cook in her play kitchen, and cuddle with her stuffed animals while telling them jokes (we aren’t sure what she is saying, but she definitely thinks she is funny with lots of giggles).

Last weekend, we had the opportunity to spend some time with the Olson Family at SunRiver. (Madelyn met Uncle Andrew for the first time!) The weather wasn’t very cooperative, so most of the time was spent indoors – but it was very relaxing! We were able to get Madelyn to Fort Rock Park once where she had the opportunity to experience the merry-go-round with bike helmet and arm casts (and good thing for the helmet, as she bonked her head on it while it went around).  Madelyn also got to experience her first televised Duck game - and proved to be quite a football fan already, much to Daddy's excitement :)

Thank you so much to everyone who has had Madelyn in their thoughts and prayers – we appreciate it more than we can ever say.

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Friday, September 3, 2010

Madelyn At Home

A quick update on how Madelyn is doing since we came home from OHSU.

Madelyn has several restrictions placed on her for the next six weeks.  First off, she will always have to wear her arm casts, as even one finger on her surgery can cause significant damage.  Due to the fact that she was able to bend out of her old arm casts, we got some that go from armpit to wrist.  However, they are so big around her arms that when playing, she was able to easily slide her arms out of them.  So the new tactic is short arm casts on during the day, long arm casts with a jacket over them for when she sleeps and when in the car.

The other restriction is with food -- she can't have any solid foods at all.  In the hospital we got her to start with drinkable yogurts and were excited that those did the trick.  Now that we've gotten home, she hasn't wanted to have those so much.  Our guess is she is waiting for us to get out the bread and the hot dogs and can't figure out why we keep forcing yogurt on her for every meal.  Same goes for baby food, which she pretty much won't even open her mouth for.  Yesterday, Tricia had a great idea and blended up eggs and half-and-half, which Madelyn seemed to enjoy, so let's hope that works.

Other concerns would be her drinking enough water (with the short arm casts on we hope she is more likely to drink from her sippy cup again -- she seemed frustrated before that she wasn't able to reach it to her mouth on her own) and pooping (as of my writing of this, she hasn't pooped since before she had surgery).  She also spiked a bit of a fever when she came home on Wednesday, peaking at about 102, but has been consistently in the 98-100 range since then.

All things considered, she seems to be attempting to get back to normal with things and we are doing our best to put her back on her normal schedule to help that (though administering medicine to her at regular intervals can screw that up).  Though we've always sworn we wouldn't have her watch tons of TV, this seems like an okay time for an exception to the rule and she's become enamored with Monsters, Inc. since being in the hospital and it seems to calm her down, so we've had that on for her a lot.

We'll try to take it easy with her over this weekend and see if we can get her back to mostly normal for next week.  She recovered quickly from the lip surgery and though this is more painful and intensive, I think she'll recover relatively quickly here as well.